The River Church Community

9/21 Part 2

Hannah Jane started awakening was taken off venilator.  But she has now had a seizure.  We will meet with Dr Edwards in morn to discuss ramifications.  Please pray there are no more and no permanent damage is done.
Xo

9/21

As of yesterday at 10 am she has received no sedation, it is up to her to awaken.  She remains on the venilator being fed via IV. I pray that she is resting peacefully in the sweet comfort of Jesus and her guardian angel..  I know she hears our prayers and blessings. She is strong and so very loved by us all.  May God lift you up as you encouge us; you are dear to us!
XO

9/20 Part 3

Hannah Jane is still not awake, but we were just able to peek in at her and pray over her.

Saw a verse today while reading a book - really comforted me.  Just read your recent loving posts in well wishes.

You truly bless us with encouragement and love!

He shall feed his flock like a shepherd: he shall gather the lambs with his arm, and carry them in his bosom, and shall gently lead those that are with young.

What a comfort there is in His arm!

XO
Hannah Jane's Mommy

9/20 Part 2

Please log onto site announcement page or in photos.  Hannah Jane had her Mri this morn and we anxiously await results on Monday.  Please keep praying.  She is still on ventilator and has not awakened yet.  Because her blood pressure increased when we saw her briefly after surgery and got her picture we must wait for her to awaken before being with her. I miss holding her, but she rests in Jesus's arms always!

Xo
Hannah Jane's Mommy

9/20

Dearest Angel Helpers,

This is such a hard time for us; we are trusting and surrendering moment by moment.  When Hannah Jane was born and I able to see and hold her after recovery, I went into a sort of denial that she had hydrocephalus.  She looked so healthy, happy and I was able to hold her and love her often.  Yes, she had cords and monitors, but from the outside all looked great, her color was very pink and she is so very sweet and looked content.  We had been told that she would be very ill upon birth, but she was a miracle to them even then.  So while she was very sick inside, God made a way that she didn't look that way and we were able to share a week of time with her that He gave us that was totally unexpected and a treasure of time we will never forget.

When Rod and I met with neuro last week and I saw the huge ventricles in her brain and the mass, I didn't want to believe it and wanted to protect her from surgery.  How could everything look so great on the outside and be a time bomb inside as her surgeon said if we don't operate immediately now?

But, we surrendered and realized that although God can heal in an instant, this mass, which we now know was not a cyst or disorganized brain matter is in fact a tumor.  Thanks be to God that they were able to remove some of it.  PLEASE pray that the tumor is benign.  We will know next week.  Had been told that it would take 72 hours, but that is from Monday because surgery was yesterday.  They had to leave some of it there to prevent taking healthy brain matter.  I cannot imagine this tumor growing and spreading in our precious, inncocent Hannah Jane's brain and body.

She is on a ventilator for an undetrmined amount of time.  She made it through the night with a wonderful huge team in the NICU watching over her.  The drain from her inner brain it being watched carefully and they prefer that we not even touch her or talk around her.  My needs and innate mother instict to stroke her and love her conflicts within me, but I trust the docs and I put Hannah Jane's needs for health, healing and rest before any of my desires.  I feel so helpless!

My heart is being torn out as is Rod's we want to touch, comfort and love our baby.  She was so very active and now she just lays there with a tube breathing for her.  We hope that she will awaken this evening.  She hasn't eaten in 30 hours and she can't even be feed by tube via her nose at this time.  Prior to surgery and prep she was eating about 70 ml every 2 hours; quite a healthy appetite!  I am to put her to breast again as soon possible because brain surgery can cause babies to lose their suck reflex, but we are not yet told when she will awaken and it is unknown when she can be touched again. 

I pray that God sustain her in her desire to nurse as breast milk is healthist for her.  I am blessed that God is sustaining me during this time with my bipolar disorder so that I don't need meds at this point and can pump to save these nutrients for her.  She is on morphine for the pain, but I know the greatest pain healer is the Holy Spirit and it is His comfort that lives on in her.

It is yet more time to surrender and trust.  Your prayers, love and emails mean everything to us and precious Hannah Jane.

As Rod and I await a blessed outcome of healing and surrender in hope, we know that her guardian angel watches over her and we pray with all our hearts and souls to be able to share a miracle of peace and healing for Hannah Jane.

Blessings and Love,
Hannah Jane's Mommy

9/19

Hannah jane is out of surgery and in recovery. The mass blocking csf is a tumor.  Could not remove all because some was too close to healthy brain matter.  Biopsy will be back later part of next week. She is on a venilator.  Had hoped for laproscopic for entry to her brain but they needed more room so piece removed from her scull is larger.  She has a tube port to drain fliud blood and to relieve pressure and swelling.  Another mri will be tomorrow with results next week. She won't wake up until tomorrow. We are praying for healing and peace for hannah jane.  Please join us in prayer.  Seeing my precious daughter this way is so hard, may God use this painful journey for her to.bring His light and into the world.

Love,
Hannah jane's mommy